Tuesday, August 5, 2014

Built Cf Strong

I consider myself incredibly blessed. I have a more mild version of Cystic Fibrosis. Although that presents itself with many challenges daily I don't find myself in the hospital as much as a lot of other people for which I am truly thankful. I started feeling sick in May. I couldn't quite exercise like I normally do, struggled to find the energy to keep up with my every day activities, and was more short of breath. That is when I started my Cayston from the earlier post "28 days". It is a strong nebulized antibiotic used to try and kill and or minimize the infection Pseudomonas Ariguinosa. I felt better but not quite up to par. On July 28, 2014 I went to CF clinic at the University of Utah for my normal check up and my Pulmonary Function Testing. (PFT's are used for lung volume measurement, how much air you can breathe in and how much you can breathe out. pretty much a whole bunch of other things as well but that is the readers digest version.) Usually if your lung volume drops 2-3 percent it indicates some sort of infection. Mine had dropped 11%. Hence the feeling crappy part. 

~~~ also note that my dropping 11% would still be some CFers dream lung function and I still got hospitalized how sad is that? ~~~

Anyways carrying on, they decided to admit me for a 14 day course of heavy antibiotics to help get my lung function up, and kill infections through IV therapy. That is where I have been for the past fourteen days.. but dont you worry, I am back, feeling better, and life is beautiful.

(During one of my breathing treatments)

My mom would come visit me and watch "our show" Witches of East End. You should check it out its a way good show. (Netflix, and Lifetime special of course.)

One of the days was my dear friend Astra's birthday. Astra passed away three years ago from Cystic Fibrosis. Her mom asked this year that we all send pink balloons to heaven in her honor. 

My cutest sisters came to visit, and my niece addysen. She was sooo cute. She would snuggle with me and then sit up and laugh and smile like crazy and then snuggle again. I love her. I remember the day she was born was so special. ( Thats a story for another time but I could go on for days.)

I don't know why I didnt get a picture of them, but Melissa and Dave my incredible in loves. (in laws) came and visited a lot. I love them so much for being so supportive and they watched our dog the full two weeks while I was at the hospital. Can you spy zooey???

One of the days I got a surprise visit from some girls in my ward. It was so awesome to have their wonderful spirits. Funny story the woman to the very right is Lanae. I was supposed to visit teach her the week I got admitted, and instead she came and "visit taught" me with Jen ( on the left) and her cutest little girls Gracie and Leah. I am so thankful for them and their effort to come all the way down from Saratoga Springs.

Every week they do PFT's to see how you are doing. I had a chance of going home on day 10 and i honestly thought that I was going to. But my lung volume had only improved by 4% which is not enough to get me back up to my baseline, so they decided to keep me the full two weeks. I was really disappointed that day, but then I had a change of attitude and thought... I don't have to be here as much as a lot of people I know, so at least I can keep my chin up and be happy that I am pretty healthy for someone with my disease.

With the IV therapy they administer very strong antibiotics. They have side effects such as nausea, diarheaa, headaches, and many more. So to off set those I had zofran (a lot!!) and other medications to help me not be quite so queezy or have such a bad headache. Ice packs also helped soooo much. Fun Fact: if you put an ice pack behind your neck while you have a headache, it helps constrict the blood vessells so that the pain will lessen. 

I loved my visits with karacat. My beautiful sister.

I am now home, and resting up so I can get all the way better. I am so thankful for every card, treat, prayer, and visitor. Many of the people who visited were not pictured here but know this. I genuinely I am so thankful for you. I am thankful for so many amazing and intelligent doctors and nurses who helped me to feel better. 

Breathe Easy Everyone.
God is good



1 comment:

  1. Your outlook on all of this is amazing! I can learn so much from you!